Hayley Knudtsen

Hayley Knudtsen brings deep compassion, connection, and energy to her role at the foundation. A devoted wife and mother of two girls, Hayley’s passion for supporting children is rooted in her belief that every child deserves the opportunity to thrive—regardless of their diagnosis.

With a professional background in sales and customer experience, Hayley excels at building meaningful relationships and ensuring people feel seen and supported. She brings that same heart and dedication to her work with the foundation—advocating, fundraising, and helping families access the resources they need.

Originally from the greater Seattle area, Hayley now calls Montana home, where she and her family enjoy skiing, mountain biking, and exploring the outdoors. Her commitment to giving back, paired with strong communication skills and a genuine heart for service, make her a passionate and impactful advocate for the rare disease community.